Monday – Friday 9am to 5pm
Who we are
In 2023, Scoliosis Association UK (SAUK) merged with the British Scoliosis Research Foundation (BSRF) to become Scoliosis Support and Research.
Scoliosis Association UK (SAUK) was originally founded in 1981 by Ailie Harrison and Stephanie Clark as the Scoliosis Self-Help Group, the organisation started with around 200 members. In the beginning, each member of the group had received treatment by renowned chest physician Dr. Phillip Zorab at the Brompton Hospital, London. SAUK remained the only UK-wide organisation providing support for people affected by scoliosis
The British Scoliosis Research Foundation (BSRF) was formed in 1973 and was formerly known as the Phillip Zorab Scoliosis Research Fund. Dr Zorab was a chest physician at the Brompton Hospital, London, specialising in respiratory problems caused by scoliosis. He was very interested in research into the condition and was the first person to organise international symposia on the subject in the 1960s and 1970s. These brought together many physicians and surgeons who had children and adults with scoliosis in their care. The symposia stimulated new research into scoliosis worldwide. Dr Zorab died in 1983 but SSR continues his work.
Since its inception, the BSRF strived to stimulate high quality research into scoliosis. It continues to hold the international symposia and continues to offer grants year on year for research into different aspects of scoliosis.
Scoliosis Support and Research is governed by a board of Trustees. The Trustees are a diverse panel of scoliosis specialists, people with lived experience of the condition and people with an interest in scoliosis as a medical condition.
What we do:-
- Provide a helpline which people can call or email for advice, support or just someone to talk to
- Provide good quality, up-to-date information on scoliosis and related health matters.
- Fund and stimulate high-quality UK based research into scoliosis and other spinal conditions
- Run a membership network that allows people with scoliosis to get in touch with other and offers the support of a SSR Regional Representative
- Organise campaigns and activities to help increase awareness of scoliosis in the general public and among health professionals
- Hold patient meetings where specialists provide advice on scoliosis and people have the chance to get their questions answered
- Host the International Phillip Zorab Symposium, a meeting for clinicians and scientists with an interest in scoliosis aetiology and the development of more effective treatments
© 2024 Scoliosis Support & Research | Scoliosis Support & Research is a registered charity no. 1181463
Website design & development by Pedalo